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An example with social impact: genetic testing and life insurance

Insurance - particularly life insurance - is crucial in terms of family protection and house purchase, two basic rights in all European constitutions. Unless you can pay cash, banks may ask you to take out life insurance if you are applying for a loan to buy a house. Genetic testing and its links with life insurance have recently received intensive media coverage in Europe.

Insurance companies have always discriminated between applicants based on the principle of "equal premiums for equal risks". It's logical that someone at high risk pays more than someone who is at lower risk. This discrimination is socially accepted and legally protected.

Results from genetic tests determine for individuals and their families whether a person has the gene for a particular disease. The test results indicate that a person will either definitely get the disease, that they have an above average chance of getting the disease, or they are a carrier for that disease.

Insurance companies generally believe that they should have access to this genetic information. They argue it is just like any other medical information and is needed for the insurance company to properly assess its risks.

They claim that if people know they will have a genetic disease they will most likely want to have life insurance: those at greatest risk seek the highest levels of cover.

However, the issue is controversial because consumers and health-care providers generally believe that this information is the result of medical advances to help find cures for disease. They argue that the information should be kept confidential in order to:

        a) Prevent unintended disclosures to insurers, and
        b) Prevent an incentive for "genetic discrimination."

At the moment, insurance companies are not asking for genetic test results (except for Huntington's disease in some countries). Instead, they ask for a declaration from applicants stating they are unaware of suffering from any disease.

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